Sunday, July 26, 2020

30th anniversary of the ADA

Today is the 30th anniversary of the passing of the ADA (Americans with Disabilities Act).  I was 15 years old when it was passed.  I have to say that it has had an enormous impact on my life.  I was born with spina bifida and have always used a wheelchair.  When I was growing up in the 80's I remember times when I was either unable to go places due to inaccessibility or had to rely on family or friends to carry me up steps to access things everyone else could.  Even sidewalks were not accessible due to the lack of curb cuts.  One of the reasons I learned how to do wheelies in my chair was so I could go up and down curbs due to the lack of curb cuts or businesses with a step at the entrance.  When I graduated from high school in 1993 and went to college the ADA was still relatively new.  Many businesses, schools, curb cuts and other services were not accessible yet. Since I didn't always have people around to help like I did when I was a child inaccessibility and segregation more noticeable to me.  
Since then I have noticed the wonderful impact that the ADA has had on my ability to access things and be a contributing member of society.  I have had the opportunity to watch communities improve.  Places are more accessible and attitudes toward people with disabilities have changed for the better. Of course it has also shown me how much work still needs to be done.  It has shown me that some segregation against people with disabilities still exist.  Not only do communities still lack physical accessibility but  people with disabilities still lack access to things like adequate health care and adequate health insurance.  As a social worker and a Certified ADA Coordinator I hope to continue working on the wonderful progress that our country has made toward inclusion for people with all disabilities and hope to continue to work on fixing the problems that still exist. 

Monday, March 23, 2020

Having a Support Network

Having a support network is very important.  It doesn't matter if you have a disability or not.  
When I started living on my own I thought that independence was living in an apartment by yourself or with friends and making decisions on your own.  As time went on I noticed life is full of times that we need a support network.
For me this includes times I am dealing with medical issues, financial issues or even times I just need someone to talk to and support me when I'm feeling down.  I also started to realize that I already have one.  I have family, friends and doctors etc. 
The people I have in my network have different roles.  For example I wouldn't necessarily go to my doctor for financial or emotional support and I wouldn't necessarily go to my friends and family for medical advice unless they are doctors or nurses themselves etc.
Support networks are different for everyone  Sometimes it may be a caseworker or a counselor to support you with financial issues or housing or living situations just to name a few.

Things To think about with support networks:
1.  Emergency: this can include ambulance, police
2.  (General support: friends and family)
3.  Medical: this includes all of your doctor, pharmacy
4.  Finances
5.  Counselor Or Caseworker


When setting up a support network it is important to put things that enable you to contact them. This includes the NAME, NUMBER and sometimes ADDRESS
Putting your support network somewhere that you can see or easily access is very important.  Ideas include on the refrigerator and in your cell phone and/or your iPad.

Monday, December 30, 2019

your Profile Photo, Image may contain: text


John has always wanted to become a crime fighter - But when friends mocked his dream because he uses a wheelchair he refused to give up. He works day-in-and-day-out at growing strong and smart. He proves everybody wrong. Super Cyclist is a book for every child who, like John, holds tight to their dream of becoming more than their physical limitations.

https://www.amazon.com



Thursday, March 21, 2019

podcast interview: Independent Living on a personal level

I was recently interviewed by Roni Sasaki.  She is a skier who competed in the 1992 Paralympics. During the interview we focused on various things through my life that I have faced and overcome.  I have attached the link below
Dave Carl
http://www.ronisasaki.com/podcast/18-a-leg-up-on-life-dave-carl

Wednesday, April 10, 2013

Setting Goals

                                                      Setting Goals


*everyone can achieve goals no matter what their situation is!*


1. Ask yourself what do you want to accomplish?
EXAMPLE: I want to become more active


2. Describe the goal: what does the goal involve?
EXAMPLE: I want to be able to get out and do things instead of being inside all day  watching TV.

3. List the “mini goals” that need to be met to achieve the goal.
**I say "mini goals" instead of steps because there are times in life when even the simple steps   
    are not easy to do and therefore are goals themselves.**

     -mini goal example: I will make a list of activities I enjoy doing.
        -by Monday

     -mini goal example: I will look up the names and contact information for places in   
      my area that provide the activities I am interested in.
         -by Tuesday

     -mini goal example: I will contact the places that provide these activities of interest     
      and ask for a description of what they do, as well as when and where they meet.
         -by Friday

     -mini goal example: I will check to see what transportation is available to attend the     
      activity.
         -by Monday

     -mini goal example: I will set up transportation to and from the activity.
        -same day (the day before if public transportation)

4. Below each "mini goal" write a date to accomplish it

5. ATTEND THE ACTIVITY

Monday, October 29, 2012

Workplace Communication Tips for People Living with Disabilities

Through my career I have seen the progress of people living with disabilities in the workforce who at first had very low self-confidence and communication skills. Many knew what they wanted but did not know how to ask for it or did not have the courage to ask for it.
It is important for employers and co-workers to understand that someone with a disability can be just as capable in the workforce as anyone else, but this understanding must begin with the individual living with the disability. I have a very obvious disability because I use a wheelchair, but I also have a few hidden disabilities as well, including learning disabilities. In my experience as a social worker and job coach, people living with hidden conditions like learning disabilities and who are entering the workforce after some time away, may need to work on their self-confidence, without which they may hang back from sharing with others. On a personal level, I had a hard time talking about one of my challenges—severe epilepsy which at one time affected my ability to concentrate. Through time I have learned how to work with my hidden disabilities so I can ask for appropriate job accommodations, while at the same time helping my clients find the accommodations they needed in order to be effective workers.

Employment is not something that is easy for everyone but you.

It is very common for everyone—whether you are an individual with a disability or not—to feel uncertain about themselves and not very confident in the workplace. This feeling of uncertainty may linger, making someone with a few extra challenges have a hard time trusting others or believing that they are wanted. One thing it is important to realize is that you went through an interview just like the others and obviously there are qualities that your employer saw in you just like they saw in your coworkers. People whose life experience has been very difficult often hear—and remember—negative feedback much more than positive feedback, which they may not notice at all. Learn to challenge these feelings of self-doubt by paying attention to positive communication or remembering you were hired for a reason.

Good work communication requires both talking and listening—most people have to work on at least one.

If you are getting a job for the first time, understand that good work communication is hard work for even the most experienced member of the workforce. It requires speaking clearly as well as listening and processing information. Some people who are good listeners may be unable to ask for help when needed or find that their talents are overlooked. Employees who are good at talking may make mistakes because they didn’t listen closely to a set of instructions.
Like many of the issues that affect workers living with disabilities, communication differences are often minimized when employees talk to someone—a supervisor, a human resources worker— about their specific needs. Being upfront about something and providing a solution shows that you are aware of an issue and willing to improve. It can also reduce some of the worry or shame you may feel about something that is not a big deal. Some examples are: “I get a little nervous speaking in front of people—can I try out my presentation in front of someone first?” or “I heard your instructions, but would you mind writing them down and e-mailing them to me—I’m a visual learner.”

You don’t come to work to make friends, but you can’t be an effective worker without allies.

One of the first things I reinforce to new and returning workers is good personal boundaries. People who tend to be shy or anxious may be worried about the uncertainty of a new job setting—meeting all those new people after spending most of their time within a small support network may feel like a big stretch. For others, I need to teach the difference between the kind of friendliness expected between coworkers and the relaxed friendliness they might share with family and friends. It takes some finesse to know which coworker expects nothing more than a friendly good morning and which people are open to a short chat about an appropriate topic. There’s nothing wrong with asking someone—a coworker you trust, a friend or family member—for feedback on an interaction you weren’t sure about. Remember that every workplace has different expectations, so you aren’t the only one that has to learn the ropes.

Learn from setbacks.

Frustration is another area that will affect you from time to time, just like any worker. For someone who has low self-esteem or feels unsure on the job, one mistake can seem symbolic of a larger fear. I tell people that letting, “I didn’t do this one thing right,” turn into “I can’t do anything right,” makes it that much harder for you to pick up and try again. Instead, work on correcting the situation and remind yourself that everyone makes mistakes—not just you. If you get frustrated with a coworker, it is important to talk to the person in a calm way without showing anger. Learn about the chain of command and find out who are the appropriate supervisors to contact when you have a particular type of problem you can’t handle yourself. Above all, taking a moment to de-escalate and get some perspective is always a better idea than reacting impulsively.

Know your rights.

I recommend to my clients that they tell employers about any job accommodations they might need once they are hired—not necessarily during the interview. This is another example of something you need to take the lead on—most employers are not likely to ask you.
An employer is required to provide a reasonable accommodation to a qualified employee with a disability unless the employer can show that the accommodation would require significant difficulty or expense.

Here are some tips to help people—even those who have been working for a long time— who may have a difficulty communicating with supervisors about accommodations.
  • It is reasonable for you to talk to you supervisor about your concerns. Ask for a meeting with him or her to talk about what you need in order to do your job to the best of your ability.
  • While you are within your rights to ask, remember that you are still dealing with your boss and that a pleasant request works better than a demand.
  • Your workplace is within its rights to ask for documentation such as doctors’ notes confirming that you need what you are asking for, and that this is not discrimination.
  • Be confident when asking for what you need. Remember that you know yourself better than anyone and thus know what you need.

Thursday, October 20, 2011

Adaptive Sports

ADAPTIVE SPORTS

Through my life I have learned that there really isn't a sport that a person with a disability can’t do. In the article I wrote "Becoming and Staying Active", I briefly mentioned some of the sports I enjoy doing.  Of course the specific sports I listed: wheelchair football, wheelchair basketball, wheelchair racing, tennis and Kayaking are just some.
I have enjoyed playing sports for as long as I can remember. My family showed me that a kid can be a kid whether they use a wheelchair or not. For me sports started pretty young with my brothers and sisters. I remember going to the neighborhood swimming pool to race and play games or the local tennis court to play a game of tennis. If we weren't doing that then we were playing sports with the other neighborhood kids like street hockey, baseball, touch football or even kickball, (yes kickball even though I use a wheelchair).
When I got older, I got involved with more organized sports.  In middle school I started playing wheelchair football, horseback riding, which was a therapeutic program my parents got me involved in but its still a sport, wheelchair racing and swimming through the same program New York State Games for the Physically Challenged, sledge hockey, wheelchair basketball, softball, volleyball, fishing, golfing, bowling and even going out  kayaking on a lake or river with a group of friends.  There have been so many sports that I have tried through the years that I'm sure I am forgetting some!
For me not only are sports something I enjoy doing but its good exercise and definitely good stress relief after a long day or a long week.  There’s nothing better then hanging out with a group of friends and playing a game of wheelchair basketball or wheelchair football in a local gym.
If you want to learn about additional adaptive sports that I didn't mention or if you are having a difficult time locating adaptive sports in your area a couple of options are the Sports N Spokes website which is: http://pvamag.com/sns/   or http://www.sportsabilities.com/.